Tuesday, November 30, 2004

From the Canadian Press:
Fabry patients fight on after panel urges governments not to cover drug costs
Patients suffering from a devastating and fatal condition known as Fabry disease are vowing to fight on after a drug review panel advised governments across the country not to cover the extraordinarily high cost of the only drugs available to treat them.

"The patients are obviously very, very anxious," says Fabry patient Ed Koning, his voice rising with anger as he discusses the recommendation of the Common Drug Review on the two drugs, Fabrazyme and Replagal.

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