Sunday, May 13, 2007

Experimental drug is Ian's only hope

From the Hamilton Spectator:
Hope was the last thing Ian MacPherson expected.

Pompe Disease was marching through his body on schedule, disabling his muscles and lungs. There was nothing doctors could do to stop it.

"I didn't expect any treatment in my lifetime," he said.

But then his parents discovered Myozyme on the Internet. The drug was so new it was still being tested in rabbits. Desperate, they requested it anyway. They were denied. It was too experimental and expensive. ...more

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